tag:blogger.com,1999:blog-19128701.post115772536751609690..comments2024-01-29T13:03:32.881-05:00Comments on My son has diabetes: Feeling klempyPenny Ratzlaffhttp://www.blogger.com/profile/03368479901015692591noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-19128701.post-1157940636716331922006-09-10T22:10:00.000-04:002006-09-10T22:10:00.000-04:00Scott and Keith: Thank you so much for your comme...Scott and Keith: Thank you so much for your comments about remembering life before D. It has helped ease my mind a bit.<BR/><BR/>Lyrecha: I like the hipster short cut better. I just like saying it:-)<BR/><BR/>Shannon: I hope you and I are right about Faustman's research. I try to hold back a little, but if her human trials fail, I will be devastated.<BR/><BR/>maryellen: What a nice way to spend the day. I'm all for flipping the bird to D!!!<BR/><BR/>Megan: I wish you peace on your one year anniversary.Penny Ratzlaffhttps://www.blogger.com/profile/03368479901015692591noreply@blogger.comtag:blogger.com,1999:blog-19128701.post-1157772008696089562006-09-08T23:20:00.000-04:002006-09-08T23:20:00.000-04:00Penny, My one year anniversary is 3 weeks away. O...Penny, <BR/><BR/>My one year anniversary is 3 weeks away. One thing I have learned in the last year is that diabetes is a very emotional disease whether it is going well.<BR/><BR/>Your post shows that, and you picked out a great song, and a personal favorite of mine that conveys that message well.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19128701.post-1157763218704340942006-09-08T20:53:00.000-04:002006-09-08T20:53:00.000-04:00And to add on, I completely agree with what Scott ...And to add on, I completely agree with what Scott and Keith said. I am sure Riley will excel in his life, do what he wants to do, do great things no doubt, and diabetes will just be a part of it. Life will go on and like everyone else, he'll learn to adapt to the challenges life has brought and continues to bring him. <BR/><BR/>My mother was with me when I was diagnosed, 29 years ago, and pretty much managed my care entirely when I was a child. But today, if you ask her about me, I think she'll tell you she's proud of my professional and personal accomplisments. The diabetes, honestly, she has said that I handle it well, I'm very smart about it, and I haven't let it stop me in any way. Please take this the right way, but I hope you're saying the same things about your son in the years down the road as well.Lyrehcahttps://www.blogger.com/profile/14731508321420598343noreply@blogger.comtag:blogger.com,1999:blog-19128701.post-1157762591878503412006-09-08T20:43:00.000-04:002006-09-08T20:43:00.000-04:00Hi Penny - *sigh* - know how you feel, really and ...Hi Penny - <BR/>*sigh* - know how you feel, really and truly I do. Sending you a big hug - - - - !<BR/>I dreaded Tom's 1st anniversary too - UNTIL I looked at pictures taken the months preceding the dx. (He was 2 1/2) Tommy looked like crap. Dark circles, pale, droopy... Then I looked at him a month after dx. You guessed it - he looked worlds better.<BR/>So - Tommy really had d. way before the actual dx of Feb. 27, 2004. And so did Riley before his dx.<BR/><BR/>So - what I did was on that day, we had a party. Seriously. A party. I had balloons all over his room when he woke up, and all near the table for breakfast. I tole him and John, his older bro ( he was 6 then) that ' one year ago today, we found out that Tom had d...." and that while we want it to go away, we are thankful that Tommy was OK.<BR/>And then we told them that we were proud of Tom for handing it so well, and for John who has been a great big brother. And - then we took them to toys r us and let them pick out a toy to celebrate.<BR/><BR/>It was empowering, really. It's like we flipped the bird to diabetes!methttps://www.blogger.com/profile/04150806596755196342noreply@blogger.comtag:blogger.com,1999:blog-19128701.post-1157762059673522642006-09-08T20:34:00.000-04:002006-09-08T20:34:00.000-04:00Very nice post... but the true word is actually "v...Very nice post... but the true word is actually "verklempt" or "ferklempt." (Klempy's just a hipster shortcut the Mister and I use). See http://www.urbandictionary.com/define.php?term=verklempt for more.Lyrehcahttps://www.blogger.com/profile/14731508321420598343noreply@blogger.comtag:blogger.com,1999:blog-19128701.post-1157738433597229332006-09-08T14:00:00.000-04:002006-09-08T14:00:00.000-04:00Penny:I'm with Scott on life before diabetes, I th...Penny:<BR/><BR/>I'm with Scott on <I>life before diabetes</I>, I think it is a much bigger issue to you than Riley. Frankly, I'm glad they diagnosed it in me and got me straightened out. Even though it's been almost 38 yrs I can still remember how absolutely terrible I felt and how sick I was pre-dx.<BR/><BR/>I appreciate your efforts to raise money for Faustman's research. I wouldn't worry about the research team running out of money. If the first 9M worth of trials appears successful I think the other 2M will pour in.Keithhttps://www.blogger.com/profile/04290126384874472887noreply@blogger.comtag:blogger.com,1999:blog-19128701.post-1157733799499035722006-09-08T12:43:00.000-04:002006-09-08T12:43:00.000-04:00Penny, this post really hit home with me. I too a...Penny, this post really hit home with me. I too am counting on Faustman's research to come through with successful results, but then I hold back thinking that it might not happen just so I won't feel so let down. But then I get my hopes up thinking that even if her research doesn't work, it might spark another aspect of a cure....so not all hope is lost.<BR/><BR/>And I too feel the need to contribute so that I won't feel like an opportunity passed by because of one less contribution (sort of like every vote counts when it comes to an election).<BR/><BR/>I don't know about you, but I think what Scott said is very reassuring :)Shannonhttps://www.blogger.com/profile/11082031887238694358noreply@blogger.comtag:blogger.com,1999:blog-19128701.post-1157730129623503622006-09-08T11:42:00.000-04:002006-09-08T11:42:00.000-04:00Hey Penny, This is a great post, and I think you v...Hey Penny, <BR/><BR/>This is a great post, and I think you very nicely covered a whole bucket load of emotions and hopes and prayers and all that.<BR/><BR/>You said: "I am mainly doing this walk because I want to be able to tell Riley I did what I could to help make a cure happen" <BR/><BR/>I think that is very powerful - something that, once you are done with it, can feel very good about your work. That is powerful.<BR/><BR/>As a person who does not remember what life was like before diabetes, I can tell you that this is more of an issue for you than it is (or ever will be) for him.<BR/><BR/>He will grow up, doing everything he wants to do, dealing with the obstacles that are placed in front of him, and enjoying life. He will, at some point, probably wrestle with some of the mental things that many of us fight with, and work through the process of acceptance, and I'm sure that will also be terribly hard to watch - but it has to happen. <BR/><BR/>At the same time you will marvel at his strength and resilience - his ability to strive and achieve, to succeed and fail, and all the rest of things that happen in life. <BR/><BR/>I don't know if what I'm saying makes things any better for you, or possibly even worse - and if so, I'm sorry - I don't intend any "down" from this comment. <BR/><BR/>As always, if there is anything I can do for you - please don't hesitate to call on me.Scott K. Johnsonhttps://www.blogger.com/profile/06601851114190791084noreply@blogger.com