Well, Riley's pancreas is either on vacation or has finally quit for good. His sugar started out at 206 yesterday morning and pretty much went up from there. In 3 days, his carb coverage changed from 1/2 per 30g to 1/2 per 20g and his TDD went from 2 to 4.5-5. We increased his Lantus to 1 1/2 unit this AM and the sugars have been a little better since then.
In my last post, I said that no sugars over 300 since Lantus increase, well, yesterday blew that out of the water. 1 hour after supper and NovoLog, he was 328. (Pre-supper sugar was 191). OK, not much I could do because he'd just taken Novo. So, 2 hours later, his sugar was 425!!!!! His sugar has not been up to 400 since his first few days home from the hospital. He still had trace ketones. (He's lost a pound this week.) So, he got a full unit of Lantus, later sugars were 160 and 153. 3 hours after Novo: 271. One hour later, back up to 315. This was at 3 AM, so he only got 1/2 unit. It came down well after that. His sugar this morning was 133. He did spike up to 348 one time today, but came back down again an hour later. The 348 was before his new dose of Lantus kicked in. ( I just checked his sugar 3 hour after his Novo at supper and it's 259. I think the 1 1/2 unit of Lantus is helping, but it's not quite enough. I have a feeling, we may be increasing up to 2 units on Tuesday.
I cried myself to sleep for the first time in a while last night. Fatigue and worry just don't mix. My husband and I went to bed. I was trying not to let him know I was crying, but when he leaned over to kiss me goodnight, he could feel the wetness on my cheeks and I just lost it. I got a good cry out last night. I even went and layed in bed with Riley for a while and cried all over him. Thankfully, he didn't wake up. All I could think was, "This is so unfair. He has to deal with this for the rest of his life." Not fair, not fair at all. I know, life is not fair, but I want it to be unfair for me, not him. You try to protect your kids from as much unfairness as you can, but I can't protect him from this. There is absolutely nothing I can do about this, and it kills me. I know, I can control it, somewhat, but I can't make it go away. I just can't make it go away.