Just a very quick update on the latest from the insurance company. Yesterday I received a call back from the pharmacist at the insurance company. She says the info for limiting the strips came from the ADA. They recommend that Type 1 people test 3-4 times a day. ( They also say people with Type 1 should test "several times a day". Is that vague enough for you?) Also, they use Medicare guidelines (for my 4 year old) which recommend people on insulin use 100 strips per month. She said they allowed more than what was recommended because they realize there are days where you need to test more than others.
So, here's my problems with this. # 1) The American Diabetes Association recommends testing 3-4 times a day. There is something very wrong with this. The minimum should be 8 times a day. (before meals, 2 hours after meals, at bedtime, and in the middle of the night) The ADA needs to be more of an advocate for people with Type 1. If insurance companies are looking to the ADA for guidance then their guidance should be better and not quite so vague. #2) I have a problem with the ADA, FDA, and insurance companies not differentiating between Type 1 and people on insulin. I have plenty of Type 2 patients that are on insulin. There is a huge difference between the two. While some people with Type 2 benefit greatly from insulin, they do not need it to survive. My son needs insulin just to live. He has an organ that does not function. In order to try to be that organ for him, I have to test him more often.
So, does any of this bother anyone else? I am continuing the battle with my insurance company by filing a grievance. But, would anyone care to help me educate the ADA on why they need to take Type 1 a little more seriously?
Please let me know what you all think. I feel that the main organization that is looked to,to educate the public about diabetes is falling down on the job. I think we need to let them know this.