I have a lot of thoughts swirling around in my brain today. I can't seem to make sense of them all.
For one thing, I am TIRED. Riley started running high at bedtime last night. After a few corrections and still having a sugar of 363, I changed his set at around 1:30 this morning. Then, because he tends to run low after site changes, we were up several more times just to check. He never went low. He woke with a sugar of 159 this morning. He must have been OK since then. His teacher has orders to call if his sugar is less than 70 or more than 225. She hasn't called today.
I want to DO something about this disease. I want to scream from the rooftops that my son has this disease and how often he must stick himself with needles and how I had to wake him at 1:30 this morning to jab a long needle into his delicate flesh. I want to scream that I'm terrified of complications and low blood sugars.
But, mostly, I want to scream that my son did not get this disease because he ate too much sugar. He does not have "bad" diabetes (as opposed to the good kind other people have?). Neither he nor I did anything to cause this disease and it is not your grandparents kind of diabetes.
I want to change the name of the disease that my son has. Let Type 2 keep the diabetes term. Someone at this discussion over at tudiabetes recommended that we rename it Catastrophic Ruthless Attack on the Pancreas or CRAP for short. I like it. Or maybe we could call it beta cellosis. Or pancreaspoopedoutitis. I don't know. I want people to know that the disease my son has is not the disease that their grandmother has.
I want to make people aware. How do I do this? I blog, but my readers are already painfully aware of this disease.
I wasn't going to share this for fear that people would think it was a little off the wall, but at this point in my sleep deprivation I really don't care.
I emailed The Ellen Degeneres Show yesterday with statistics about diabetes. I made them aware of the difference between Type 1 and Type 2 diabetes. I told them that November is National Diabetes Month. I also made them aware that November 14 is World Diabetes Day and provided them with a few links. I asked that they consider mentioning diabetes on the show to create awareness.
I didn't get back a reply so I'm sure my email was promptly deleted. But, hey, I tried.
I've thought about emailing other major shows also. I figure even if it doesn't help it won't hurt either. I'm only one little mom with a blog. But, if we all flooded them with email about November being National Diabetes Month and our own personal stories, maybe they would pay attention. Maybe they would at least mention it on their show. Anyone with me on this?
My dream is to have gray ribbons everywhere in the month of November much like the sea of pink we see in October.
Is that so much to ask?