One year ago today we began on our pumping journey. It really doesn't seem like it's been that long, and then, in a way, it seems like we've been doing this forever.
We did our training at Wake Med in Raleigh. I remember that day. I was so nervous. I just knew that anytime Riley moved he would pull out his set. He's one of the most active 4 year olds I've ever seen. People actually comment all the time on how "busy" he is. And, in the last year, I think his set may have pulled out twice.
I remember putting his set in. It took me forever to rewind the pump and prime and all that stuff. The pump kept timing out and going back to the main screen before I could get to the next step. Now, from start to finish, it takes maybe 10 minutes, if that long.
I changed his set just this morning and barely even thought about the steps. It's just second nature now.
I really can't say enough nice things about the pump. I absolutely love it. I can't imagine what our lives would be like without it. I know there is no way we would have an A1C of 7.2 on injections. I know plenty of people do, but there's no way we could do it with Riley.
He gets such tiny doses of insulin. When he was on injections, he would often just run high because he couldn't get a small enough dose by syringe to bring him down. Early on, it was not unusual for him to get .15 unit for a correction, impossible with a syringe. So, when he needed just a little correction, he just ran high instead.
As much as I love the pump it's more work. Especially if you really want to fine tune everything. I mean you can change your insulin dosage from one hour to the next.
I've had my moments when I just wanted to throw the darn thing out the window. Especially early on. (To read about the first month of pumping go to my March 2006 archives. But, beware, it's not pretty.)
When I look at the picture at the top, I can't help but feel a twinge of sadness. While I'm so glad the technology is there and that Riley is able to benefit from it, it's also a little painful to see him attached to a machine.
But, it doesn't seem to bother him at all.
I'll leave you with a couple of pictures I took before I got the one you see at the top. Riley wouldn't be serious.
Pump or not, my kid is still a goofball.