Wednesday, February 15, 2006

No pump for you!

We did not get the pump today. Actually, the UPS person brought it to visit, but since no one was home the pump didn't want to stay.

UPS was supposed to deliver it between 12-4. My mom arrived at 11:50 ( I had to work) There was a nice little note on the door that they tried to deliver it at 9:30. Not even close to 12-4. But, they promise to return tomorrow. (between 10:30 and 2:00) Since I am not working tomorrow I should be here to greet it with open arms.

Riley is very excited. He understands that we have to learn to use it first, but he keeps asking questions about it, like "Do I take it off when I sleep?" and "Can I have root beer like Holden when I get the pump?" (This last question prompted me to buy diet root beer, which satisfied him.)

I wish I could share his enthusiasm. I know that this is going to be good for him, but everytime I picture him in my head with this thing attached to his body, I just want to cry.

Well, I'm going to set up vigil at the front door now. UPS is supposed to be here between 10:30 and 2 P.M., which evidentially in "UPS world" means roughly 5 AM.


Anonymous said...

Good luck with the new pump! We have Animas 1250. It is the smallest pump. It can easily be hidden if you wear the pump in a waist-it pack in the small of your back. We have done that for long ballet rehearsals where she is wearing a leotard, but watching most of the time, not dancing. We disconnect if she is actively dancing or for any sports. Pump-wear has undershirts with side and back pockets. Erin wears it on a waist pack to the side front of her body. Funny, we ordered tons of pump packs, clips, etc. and she is attached to one particular pack... won't wear any of the others. He will find a way to wear it so it feels comfortable for him. The Animas people always get back to you promptly, even at night. Great customer service. And we like the fact that we can reduce her blood sugar 20 points instead of 50 by using the .250. It is an adjustment -- I'm not sure if we are even adjusted yet -- but with education, I'm sure you can get the best results.

Sandra Miller said...

Yes, I know.

Until Joseph actually started pumping, the thought of him attached to a medical device 24/7 was almost unbearable.

But after that first day-- when we didn't have to give him a single shot; when I saw the smile on his face as he realized what this pump could really do for him -- much of that early anguish disappeared.

Because, quite frankly, that little pump has become a part of him.

Yes, it still makes me sad (and at times, mad) to think that he needs that thing, but man I am glad he has it.

bingsy said...

That's fantastic that it's finally here. You have to admit that you are blessed that Riley really has an advanced understanding of his world. Kids develop at such different paces during early childhood. I would have been clueless at age three, or I'm guessing because I don't remember too much before 4 or 5 years.

bethany said...

i was supposed to have my animas 1250 by 10:30 this morning ... but by 3:30 this afternoon it still wasn't here ... well it finally came at around 5:00 tonight - i was so excited ... but then i got so nervous - I opened the package and took the pump out, looked at it - set it all the way across the table from me - and took my minimed (named grover) off of my hip and stared at the two of them ...

but now I'm excited. I meet with the lady tomorrow at 9:30am to start on my animas ... who knows - maybe I'll like animas.

Good Luck

Penny Ratzlaff said...

Thank you everyone for you encouraging words. I've been on the verge of tears all morning.

Anon., I'm am so looking forward to the lower basals and boluses. Two nights ago his sugar was 349. We gave him 1/2 unit of NovoLog (which is the lowest dose you can give with a syringe) and 2 hours later he was 74. That's a drop of 275 points!

Sandra, I don't remember. Did Joseph do a saline trial first? I'm not sure how Riley will like being hooked to a pump and still getting shots for a week. Even though I've explained it to him. I'm not sure he really understands.

Chrissy, I'm a little biased, but I think Riley is smarter than your average 3 year old.

Bethany, Best of luck with your new pump!!

Anonymous said...

i read your entries and I foresee my thoughts mirroring yours, as my 4 year old is going to be on the pump by May, we think. We are going to the pump conf. in MArch ( philly) and we will see each one, etc. I believe you when you say that your son is very smart for 3. My son was 2 1/2 at dx., and he was extremely articulate in his hatred for d. "I don't want diabbebbes..." We talk to him as I would a young adult - enough info for him to understand, but not all of the scientific, sometimes scary, adult info.

Best of luck!
Please tell us everything!

Mary Ellen

Major Bedhead said...

You'll get used to the pump being on him pretty quickly. It's weird at first and looks so obvious and bulky, but I found that no one noticed it being on Olivia. Either that or they thought it was an mp3 player or a phone.

Shannon said...

I got a little weepy when I thought of Brendon being hooked up to the pump. But, I got over it pretty quickly.

We were taught how to do the insertion with Brendon's nurse educator which was the start of the saline trial. Then we met with the Cozmo educator and she helped us set up the pump and loaded it with insulin.